Wednesday, January 25, 2012

stream of four years' consciousness

I need to write, but I don't want to.  I know there are things to write, but I don't want to. I've told my story too many times until I can see people inching away thinking Why does she have to mention this again? Dead babies, lost pregnancy infertility, Grief. I have talked and vented and cried. I have yelled at people who didn't deserve it. I have loved and I have gotten lost in it. I have lost who I am, what I want (need) who I used to be   No that's not right.   Kubler Ross says we tell our story to make sense of it, to let a little in at a time, as much as we can hard it leaks out a bit at a time with tears with seething -- the almost sweet smell of amniotic fluid on the white pad between my legs -- after that first burst it came and went  movement, sleep I could feel it leaving me. My only living son   my body slowly slowly bit by bit falling away his source of life of growth even as his heart beat strong wavy lines on the ultrasound, Oh look, you can see he's practicing breathing -- But how could he live, how could he grow and breathe and play when my body took away what he needed to do all these things

I had wanted to watch my child grow -- discover his fingers and toes, giggle and walk, grow into a person a little beautiful person someone to walk with for a little while -- so trite is the expression but walk with as he grew on his own with his mother and father slowly receding as he grew into a man -- I wonder if the wonder and joy of watching your child discover his toes ever really goes away

My chest closes off and my throat is tight, squeezing tears, again the tears that you'd think would slow, would dry up after four years

What did that what closed my throat discovering pink little bubble gum toes that fit in a little toothless mouth -- the milestones of growing up all those things I knew I was letting go of, letting him go -- And I couldn't even face it, couldn't be present.

Why didn't we wait a little longer? Why was I the only one with hope -- desperate hope for a future

Was it imaginary? this future? or would it bring pain for my boy? Toes he couldn't reach -- brain bleeds and spastic, cramped muscles -- a feeding bag an ostomy.  Five to 10 percent if we made it to 24 weeks, 28 weeks -- 32 -- stunted lungs -- poor weak legs --

And I couldn't say good bye -- not to my cold dead child.

I watch my sister with her eminently healthy child, the one who discovered her toes and fingers and slept, newly born, with a smile on her face -- She is happy and sociable and is learning to use verbs -- verbs, just like that. and she says, I love you, Aunt Sue, and I  -- my body my chest constricts with all the air my son never got -- (neither of them got) -- at least one had a chance, such a small one -- oh, the breath stops in throat, and I need to practice breathing.

42 comments:

Betsy said...

your post took my breath away. Thank you for sharing. It is so hard when your grief is in such contrast to the joy that others seem to have. I know how that is. I think of you and your boys often, even though I'm a stranger in the internet.

Michele said...

(((hugs)))

beth said...

i feel so trite saying this -- but this is just so beautifully written. truthful and beautiful like great poetry is. thank you for posting it. and like Betsy, i also think of you and your boys often.

Sara said...

I really don't know how to do justice to your post with a comment. I just wish with all my heart and soul that it wasn't this way.

Catherine W said...

I can't say it better than Beruriah has above. I can't do this justice with any words I could write in response. I just deeply wish it wasn't so, that you had seen your son grow and thrive. I'm so very, very sorry.

Helene said...

I lost a little boy the same way almost 11 years ago. My sister was pregnant too, just
as far a long as I was, but her little boy made it, even though the umbilical cord made a last minute attempt to take him away from us also... I've been
feeling a lot of the same things that you describe here over the years. It seems so crazy when I read your story...That you survived it...That You made
it through...That you're still making it through...The same can of course be said for everyone who has experienced the loss of a child. But today, I'm
relating to your pain in a different way, cause I know what it meant to struggle with the decision to end it and, to still struggle with the consequences.
Perhaps I also have tears for you, that I never had for myself... Sorry, I know this is long and, I'm not sure if I'm making sense right now. Grieving
is a rather crazy business even when one's not crazy... I wish it never happened...Not to you...Not to me...Not to anyone...

loribeth said...

(((hugs)))

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Whenever i see the post like your's i feel that there are helpful people who share information for the help of others, it must be helpful for other's. thanx and good job.

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